As I look back 2011 was yet again for me a tough year, although it was in no way as bad as 2010 the official year of suck. Ryan has had what seems like twenty evaluations and countless appointments. This school year has been, as you all know, hard on all of us. The time and attention that it takes for Ryan to get his work done could destroy our family. We don’t let it and we muscle onwards, even when we don’t want to write or read one last thing. Our quest for TSS services is still alive this year and it counts 18 months since we initiated the process to procure help. We have another meeting with the results of the Functional Behavioral Analysis on January 27th. I think many of the evaluators, case managers, and doctors we have seen are in agreement that it is needed. The amount of TSS hours and convincing the grand boobah of TSS that it would help Ryan function better is what is left. We have dotted all our i’s and crossed all our t’s in the information that was submitted, and they are asking for more
Aaron is ending 2011 with a bang. He is a model kindergarten citizen. He leads the class with how many books he has read. Some night’s he brings home as many as 10 books to read. He is voracious and so much like I was as a kid. I feel so fortunate to have this neurotypical experience with him. It is so different and yet in the end the joys and sorrows are the same. He had a good year. Only one accidental exposure to a food and we never needed to use his life saving epi pens. That is a win.
We are doing nothing for New Years Eve. My nephew and his girlfriend were here last night and this morning. She is working on going to Physician Assistant school. She has to volunteer in a hospital for 400 hours as part of her acceptance. She got a horrible stomach virus after getting run down working and volunteering and woke up very sick this morning. She hasn’t been able to keep liquids down and she is in the emergency room getting IV fluids. My husband had the same vomiting thing but he seems to be turning the corner. Our washer broke last night so with my nephew”s help I went to the laundry mat. It would of been nice to go with Cecily, Charlie, and Tori to the fireworks and dinner but there was just no way. Even my kids are still in their PJ’s never even asking to go out to play today. It is as if the year has drained us all and we need to recharge. Tomorrow I work and it is the craziest day of the year for my bar because of the annual Mummers parade that passes less than a block from my bar.
I have hopes and dreams for 2012. I hope to get more work doing my jack of all trades/social media helper gig. I love it and I hope I can get busy enough that I will forever be done working weekends in a bar and never having to choose time with my family over sleep. I hope we get Ryan’s Pervasive Developmental Disorder diagnosis finished and we qualify for more services to help him socially. I hope he remains seizure free. I hope again this year we never have to use Aaron’s epi pen and at his egg challenge on April 15th we discover he has indeed out grown his allergy to egg, shortening our allergen list and opening up his food choices a little. I hope my husband continues to be challenged at his job but works less hours this year and closer to home. I hope we all remain as happy as we are today.
I want to blog daily again. I am going to give it a shot. Come and root me on. I hope 2012 finds everyone who reads this happiness and success in the New Year and is surrounded with as much love as I am.