It’s a big week this week. Finally, we have our last TSS meeting on Friday. I really didn’t want the meeting to be on a Friday but, of course the universe threw it’s middle finger up at me and said, too bad sleep is for the weak. I am going into this meeting armed to the teeth with the final few pieces of paper that I thought might help. Ryan’s teacher wrote a letter explaining how TSS services will help Ryan in the classroom. Around Christmas his first grade teacher asked me how our quest for TSS services was going. I told her the whole sordid tale. She is an amazing person, and she offered to write a letter saying Ryan has been in need of TSS services for two years. I will go armed with these two letters and Ryan’s latest behavior reports which have been less than stellar. Before Christmas his behavior had vastly improved but since returning from Christmas break, Ryan has not had one green good behavior day.
By the end of the week we should be more sure about the date on an appointment for Ryan with the developmental pediatricians at CHOP for the suspected PDD diagnosis. Last time I called them they reassured me that we would be hearing soon, so I went back to doing what I do so well, wait. They told me that is I did not hear from them this week, I should call.
We also were told this week by the school district of Philadelphia that there will be no summer school this year. Summer school in July went a long way to help Ryan with his reading. I felt so let down by the school district again and plan to meet with part of Ryan’s team who is a resource specialist about academic based camps that may spring up in the wake of summer school being canceled. I have to find something because at this point Ryan, who started first grade with a two year reading deficit, is only one month behind. A long summer without help in reading will really throw him behind. Then again, at this point I am used to the School District of Philadelphia throwing us under the bus. Well, at least next year they can’t throw us under the bus because there is not going to be any bus service in the city.
To finish off the story of waiting. Aaron was told in November 2010 that he may be outgrowing his egg allergy. Yes, that was 14 months ago. Well, as of now his appointment is a mere 84 days away. Being able to consume egg will really change the food options in my house.
For now, I am trying to remain patient.
Unfortunately, it seems you have become a professional way waiting. I find it completely ridiculous what families have to go through in order to receive the services they are so obviously in need of. I honestly believe they are waiting for you to just give up. And that… well, that really pisses me off. Here’s to getting good news on Friday!!
AT waiting… Not “way”. Wth? Lol