Today Ryan saw the developmental pediatrician. Ryan’s vacation is over and he is back on the fun with brain chemistry party bus. If you have not been following along I will set you up with a scorecard. He tried Ritalin and it failed after it caused him to have a red burning face. On his medical charts it now lists him as allergic to Ritalin. Then Ryan tried Tenex. That caused that unknown till now side effect of OCD symptoms and very high anxiety so that he spent the most of the Christmas Vacation in the house. This weeks drug is Adderall.
The doctors were giving me the speech about how this time it was going to be different and they were hopeful this would be the drug for Ryan. I said to the doctors I can’t get my hopes up again. I thought can’t get my hopes up about ADHD drugs working, I can’t get my hopes up about Aaron outgrowing his food allergies, I can’t get my hopes up they can give me a definitive diagnosis for Ryan, that the TSS will be replaced with someone better, or that Aaron can be safe out and about in the world. I can’t have hope because then I can be very disappointed. I choose to take life one day at a time. I choose to keep moving forward as best I can but, I can’t afford myself the luxury of hope.
Saturday morning is the first dose. I am anxious to see what will happen. I will be moving forward with no hopes and a open mind.
January 16, 2013 at 5:28 pm
Lovin’ that last sentence there, Jo. That’s the essence of it. I’ve been saying this all along. It’s not so much a crap-shoot as it is a process. Somewhere in this process lies the answer. It’s also about the combination of elements of the TSS et al. You are all getting there- a step at a time. As with anything and everything else in life there are no easy answers. Challenging, yes. This all may net some long term rewards though. That is my hope- and belief. I do not have to remind you to be ever vigilant- that is a given, as far as I’m concerned.. Let’s just see what happens- shall we?
January 16, 2013 at 5:30 pm
We, too, are on the fun with brain chemistry party bus. It’s hard. I feel your pain and concern. Best of luck.
January 16, 2013 at 5:46 pm
I can understand. I’ll keep good thoughts for your family.
January 16, 2013 at 6:31 pm
Adderral was the drug we landed on (until we eventually added a night time dose of Strattera to compliment it). I hope that it works for Ryan like it does for Liam.
Hang in there!
January 16, 2013 at 11:03 pm
I’ll be paying close attention because I’m pretty sure Lil Miss will start on the Great Med Chase soon. She’s got the psych observation at school soon. Once I get that recommendation from the school, we’ll be going to the private psych. I’m worried too.
The only thing you can keep your hopes up about is the fact that you know you’ll work with whatever happens. You’ve been doing this long enough to know you can ride it and work it.
*hugs*
January 17, 2013 at 9:12 am
Good luck with this new med. I know how you feel about meds, but also realize they seem to be necessary to allow a full and satisfying life for Ryan. Let’s all hope this is the right one.
Hugs and hope,,,
Al